Monday, April 27, 2015


So, at the end of 2013, I said that I was so glad to see it go and that I was very ready for 2014. At the end of 2014, I was so happy because it was worse than 2013. Now, it is only April, and I am already regretting welcoming 2015.

So far this year...

  1. Fractured my left leg and badly sprained the right (tiny hairline fracture but mainly a sprain)
  2. Mike had an allergy attach that was an ER visit that started out very scary and me thinking about calling an ambulance.
  3. Morgan fell and split her elbow open and had to get stitches
  4. Regular infusions and appointments for Morgan's Dermatomyositis
  5. Many more ortho appointments where I was non-weight bearing for over 2 months
  6. Morgan's back pain is getting worse, so we started yet another specialist for her back. 
  7. MRI appointments for the back, more doctors appointments
  8. My mom who had been fighting lung cancer  suddenly got very sick with pneumonia, ended up in the ICU, and died on March 22nd.
  9. I got a bad case of bronchitis right after her funeral.
  10. Morgan had an ovarian cyst rupture which was another ER visit
  11. Morgan got a bad sore throat and sinus infection
  12. Amy got a sinus infection and a bad cough
  13. Amy and Morgan both prescribed physical therapy 3 days a week
  14. Morgan got meningitis from her IVIG and was admitted to the hospital.
Seriously. All of that in the first four months of the year. I am pretty sure that Blue Cross hates our family :(

I am writing this from the hospital, and I am even afraid to hope that it gets better. Surely, we are reaching the end of this bad luck streak? 

I have so many things to write about, and I will try to write them soon. Some of the topics to address are: critical care units and family access, especially at the end of life, meaningful use patient engagement and the 1 patient change, end of life of a parent, and pain management in healthcare. I will work on these soon.

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